Oh, I'm so glad I rang up the breast care nursing team - I got some very useful advice.
Sorry, I was waiting for whomever that statement applies to to chime in and tell us all what the advice was - coz I could use some more!
Sadly, when I rang yesterday I got the useless-[hmmm, let's not use her real name....let's call her.....Meringue! Yes! That will do!].. I rang and got The Useless-Meringue! In the past she has on two occasions said she was going to call me back about something and then hasn't; plus she has told me diametrically the wrong information about one other query I had. Excellent! Sadly, again, the nurse I *do* like - because she is actually *helpful* - was not there..... :(
So, I said - pain! I have pain! You told me the Arimidex might do this! It hurts! Paracetamol and ibuprofen help a bit! Cocodamol or Neurofen Plus help more! But Codeine! They have codeine in which blocks up the old digestive tract as soon as I open the packet! Try not to take those too much! Heat helps!
The Useless-Meringue says: Yes! Arimidex can cause pain! Do you want to move your appointment forward!? (Me: NOOOOOO!) When was your last bone scan?! (Me: Areeeeghhhhh! September! Plus, NOOOOOO!) Are you sure it's the Arimidex?! (Me - in head: WTF?!! *I* don't know! How am I supposed to know? Me - out loud: No, I'm not sure - but the pain does improve with heat and movement (i.e. Probably muscular rather than bony pain) I'll speak to the Registrar and call you before I go home tonight! (Me: Thank you!)
9 hours later:
Me: Hah! She's not going to ring again!
Phone rings - points awarded
The Useless Meringue: Take the painkillers and call me again if they stop working! Call us and we'll move your appointment forward if you're worried!
Me:........OK.......do you have any other tips for anything that might help or, anything?
The Useless Meringue:...Not really!
Me:..........OK........well, can I have some more Lorazepam then please?
The Useless Meringue:......Yes! We can do that! We will send prescription to pharmacy and you can collect it!
Me:...............OK..........thank you. Um, will this go away eventually - how long does it last?
The Useless Meringue:..Well, some people find it goes away but for some people it doesn't. But! Arimidex is one of three drugs in the Aromatase family; so we can try you on one of the others if it doesn't go away!
Me:.....So, how long until you know if it will go away or not?
The U.M.: A few months!
Me:..........................OK.................right...............thanks. Ok. Right. Right.
The U.M.: Does exercise help?!
Me: Um, well, it's better when I've been moving around....
The U.M.: Light exercise! Try that!
So I am exactly where I was this time yesterday. Bar some Lorazepam. Which was off my own bat. You can't hear my head falling off my shoulders here - but it has.
I shouldn't be surprised.
Side-effects in the cancer world are just par for the course. The attitude isn't quite: "Tough. Suck it up." But it nearly is.
It makes the Dear Other absolutely livid. If he had made his millions he'd throw it all into research into alieviating side effects to cancer drugs. But he hasn't.
So, to recap: